Is it sensory overload,
executive dysfunction, or plain old Stress?
Lately I have been trying to figure
myself out—again. The more I learn about Autism and how my brain works, the
more I understand why I have difficulties in certain areas. I feel like I have
the most difficulty keeping up with the business of everyday living.
The housework, the kids, homework,
getting to school on time, paying the bills—Did I mention paying the bills?
These are the things that appear to
be easy for everyone else in the world, but I can’t manage them! I look around
at other women who have their homes in order and feel ashamed. This has been a
tremendous source of self-loathing and guilt my entire life...
I’ve been trying to look at myself
through different eyes since I’ve discovered my Asperger’s may be the culprit.
I have been trying to figure out a way for me to do what I am good at and compensate
for what I am not. In this way, maybe, I can begin to feel worthwhile, and
forgive myself for being unable. I haven’t succeeded—not yet anyway.
Hire Help!
Hiring someone to handle the
financing, someone else to deep clean the house once a week, and putting the
baby in daycare for a couple of days per week sounds like the solution, but
unfortunately, I cannot afford such luxuries.
I’m angry that I have been trying
to balance a budget, stay out of debt, and get ahead financially for years only
now to realize that I may be working toward and impossible goal. Dishes,
laundry, cooking, cleaning, homework, car pools, doctor appointments, dental cleanings,
oil changes, and anything that requires regular maintenance is damned near
impossible for me to master. Is this an executive functioning issue? I think
so, but it is more than that.
None of these things are narrowly focused
and task oriented. They all call out to me at once, don’t take turns speaking
or wait in line. They all need my attention—NOW! And, now I’m overloaded.
The tasks act very much like all
the sensory stimuli that causes an overload, and the end result often the same—OVERLOAD
= HELPLESSNESS = MELTDOWN = ANGER = LOSS OF CONTROL AND/OR OPTIMAL PERFORMANCE
AND ABILITIES.
Sensory Overload
I experienced this last night: sensory overload when
trying to accomplish budgeting and paying bills. There were too many bills, too
little money, and they all needed my attention—NOW!
My famous foot-flapping began
followed by my hand, and the headache. A headache that felt like a sweatband
two sizes too small was wrapped around my forehead. I felt dizzy, the room spun—mayday; it was
near crash time.
I was either going to meltdown or
shutdown, but one thing is for sure, something was coming. Colors meshed into one another. I looked down at my black
flip flops and watched it blur out of focus. The straps melted into the black
rubber leaving only a black puddle on the floor.
“Crap!” I don’t think my words were
audible.
"My husband was talking but I couldn't hear the words."
My head felt heavy, my body
weighted down as if under a thick heavy wet blanket. Sleep—I need sleep. My
husband was talking but I didn’t hear the words.
After staring at him and trying to
figure out what he was saying, I asked him to stop speaking, and start over. He
did. Three times I made him stop and start over to tell me what he was saying
from the beginning, until finally I gave up. I could not hear his words; they were
not processing.
I heard sounds, and parts of words
like when someone is talking to you on a cellphone and every other syllable is
cutting in and out. That is what I was “hearing,” and worse I couldn’t make out
a single sentence.
Selective Mutism
Panicked I tried to articulate, but
my words caught in my throat. I golf ball sized lump held back the words… (not a physical
lump). Selective Mutism is what they call it, when you cannot talk for a
time. I hate that term—I didn’t friggin
select this!
When the words finally stuttered
out they were jumbled. This is one of my classic signs of severe overload. The jumbling words—I will mean to ask for a
banana, and the word orange will come out. Or, I’ll say, “I want to finish my
hot dog.” But I was eating a pork chop. Yes—both of these are real examples
that have happened. It seems to me that my overloaded brain is pulling words
from a familiar filing cabinet drawer (bananas and oranges are both fruit, and
hot dogs and pork chops both meat), but then it is selecting the wrong word. In
my mind I am thinking “banana” but my mouth says “orange” anyway. Why this
happens is a mystery to me.
Finally hubby grabbed a pen and
wrote down (IN EXTRA LARGE LETTERS) what he was trying to tell me. He wanted me to go and lie down. I, of
course, stubbornly didn’t want to. I wanted to record what was happening. He
handed me a pen and this is what I wrote:
Words…jumbled…some spelled incorrectly…
My fine motor skills were “off”
because the writing looks like a child wrote it. And my husband says this was the third attempt and the first two were illegible. Incidentally, the motor skills get this way
when I am overloaded and can manifest itself by my taking turns a bit too wide
when I am driving, bumping the curb with my back tire and having to reposition
the van several times when I am trying to get straight into a parking space. Maybe
that is more perception or depth perception?
I spent the rest of the evening, at
least two hours, trying to calm down. I tinkered on the computer, read a book
for a while, and tried desperately to remain isolated (ear plugs in, of
course).
In the end, I did not completely
regain control over my sensory processing. My speech was “off”, the dark room
was too bright, and the blood rushing through my ears too loud. Even my taste
buds were wrong because simple buttered crackers tasted funny.
Rest and Re-boot
Finally, I gave up, took 800mg of Motrin
for my aching neck and head, and 5mg of Melatonin to try to fall asleep in the
hopes that sleep would allow my body to re-boot before morning. It didn’t, not
completely. This may be an overload meltdown that will take a few days to
normalize from, but at least now I partially have my answer. These particular
tasks, the ones which overwhelm, actually over stimulate and ultimately
overload me. The result: Massive Sensory Overload and Major Meltdown.
Simply telling me that I must try
harder and do better in these areas is like asking me to run down the block
with no leg, and then chastising me for not getting there fast enough! Had I
been in a wheelchair no one would ask me to run down the block, but because my
difficulties are mostly “invisible” and I look “normal” I am expected to run. After
all…“Asperger’s is mild high-functioning
form of Autism.” Isn't it???

i think this is the first time ive read about selective mutism and thought "hey wait, i do that too!"
ReplyDeletei thought in my life there are no times when i CANT talk. but there ARE.
when im stressed, and upset, the LAST thing i want from anyone is for them to ask "whats wrong". because i cant explain. i dont want to explain. my tongue just doesnt want to formulate words.
i know how you feel. bills are overwhelming. i have done the dave ramsey classes, and i know the steps, but the execution is eluding me. its hard stuff! i get overwhelmed, and i just try to work it week by week (my hubby gets paid weekly)... so maybe its easier because the income happens more often? i dont know.
what i do know is that id like the income to happen faster, so the paying can happen, so that the OUT OF DEBT can happen....
Hi Ericka,
DeleteI know what you mean...even when things are moving along smoothly (wait...does that ever happen?) I am anxious for the paying to happen!
I feel like "I can do this," many times only to spiral into failure again. It is so frustrating. I too have taken the Dave Ramsey classes! I can make a budget, an elaborate plan to save and get ahead, but I can never seem to execute it, or stick with it.
I believe that if I did nothing else at all, I could accomplish this--absolutely. But when you start adding in everything else that demands my attention and throws me into a whirlwind I'm lost again and furiously running around that hamster wheel of mine.
Hi there, I'm an aspie Mom, only diagnosed lately and still trying to find out what it's all about. My son has Asperger's a lot more pronounced. I'm also not too goood with computers that doesn't help matters. This is the first blog I find about writing difficulties and AS!From the day of the diagnosis I have asked this question: Is my and my sons difficulty to write in certain situations (missing syllables, miss-spelling even though we "know" how to spell) connected with AS? The doc here (in Germany) says "no". If you have any reading tipps for us about this or any information to share, I'd be really grateful. I don't have a google account but am going to ask how to set one up so maybe you can mail me or just reply on here? THank you so much! Anna
ReplyDeleteHi Anna,
DeleteYou can always feel free to contact me on here, or email, whichever you prefer. I am not completely sure if the difficulties are AS related, but I am incline to think that in some instances it is.
Reading and writing difficulties have been long documented in children with Asperger's; although, this is not the case for all children with AS. For me, I was a self-taught reader (hyperlexic). I knew how to read and write before I entered school. But, for my Aspie son, it is a totally different story. He had a terrible time learning to read, and his writing (with pencil in hand) is still challenging.
Another thing that may be causing difficulty is stress and overload. As you can see here, although, I am a writer and have no difficulty reading and writing; I had great difficulties when I was in complete overload. Prolonged stressful situation will overload me, and sometimes I will not even realize I am overloaded until I have difficulty getting my words out. All this is to say, that there may be many different things at play here.
In the next couple of weeks I will look at and share the techniques that helped me teach my son to read. (I had to take him out of public school and homeschool him to teach him to read.)